Cancer Made Me a Shallower Person

I was reading on "My Crazy Sexy Life" just yesterday and found an entry by a woman discussing her cancer journey. She said that she had noticed an emotional cycle that she follows, where she is good with her diagnosis/NED status for a while, then she's anxious, then mad again, then depressed, then feels good for a while again, etc. It's good to read other stories like this, because I know for even the most seasoned survivor, the thought of all there is to deal with continually, while trying to lead a "normal life" can be so daunting. The scans and the waiting for results, for me, are especially killer.
But then I was listening to Elizabeth Lesser on the radio yesterday, and she made an interesting point. She said that we have to think about life as if it is a river, and we can fight it the whole way, trying to get upstream against the current, insisting that things go our way, living in a constant state of struggle. Or we can succumb to the river, let go, float, enjoy the ride, and accept where we are being taken. It is all a choice.
It's so easy to say that- so easy to say let go, let go of all the plans you made and all the dreams you had about what your life would be.
But when the time comes to fight, to do the awful treatment and have the surgery and spend so much time in recovery- when it comes time to make the choice to continue living no matter the cost- it isn't the picture we had created of our life that we are fighting for. What we are fighting for more days here, regardless of our plans, regardless of whether they are days spent floating somewhere we never planned on going or struggling against the current. And that's the thing that those cancer patients you talk to( -you know, the ones with that light behind their eyes-) seem to have gotten during their journey. That any day here is worth the fight.
It's noble and beautiful to come out of the situation with that new view. That every breath is worth a prayer of a thousand thanks.

But how did they get there? To the point where they are really the person that is okay with letting the river take them wherever it is going? Well, according to Elizabeth Lesser, it's really not so hard to be that person, whether we have had a cancer experience or not. And this is what she said that really blew me away: she said that in order to love your life no matter what, that every single day, you have to sit still. And in sitting still, we will be faced with all kinds of things: our disappointments, and anger, or fear, sadness, guilt, or even physical pain. As all these emotions and feelings arise, she said, you take note of them objectively and without any judgment.
That's it.
That's the key to unconditional happiness.

Because, just like sneaky Mr. Miyagi using chores and car washes to teach Ralph Macchio the art of perseverance, sitting in the midst of our reality and our pain little by little teaches us that we can survive anything and still be happy in the midst of it. When we allow what is to be, then, like you are in the river, you will float along and move through it.
Crazy.
Why is it when we admit our pain that we move through it so much faster? Because reality pushes on with or without us, whether we live in denial or not? Because struggling against the current is exhausting? Because acceptance saves us thousands of minutes of grief? Because time itself is the thief?

I guess the real answer is who cares why? It just does. The river will take us exactly where we need to go. There are no accidents.
Even if we fight it, we are still being pushed to the exact place we are supposed to be the whole time.

And if it's as easy as Mrs. Lesser is telling us, if I can love my life no matter how badly it can hurt, well, I'm sitting still every day.
And I'm making it a point to float on my back from here on out.

-MM

Interview with a Cosmetic Goddess!!!

Well kids, exciting news! Today Miss Melanoma has a special guest: Paula Begoun, author of numerous books such as "Don't Go to the Cosmetics Counter Without Me." She also runs a cosmetic company called Paula's Choice and BeautyPedia.com.

There's tons of good reviews out there for Paula, and one of the best things I can say about her is that her business is one of the only cosmetics companies out there that recommends products other than her own, even on her own home page. I mean, who does that?!?! That's gutsy, and speaks a lot of her and her company. She also does a great monthly "Best and Worst" Picks which I personally love. (Here's this month's, btw.)

So if you haven't heard of her (I'm talking to you there, living under that rock), now's your chance to get the scoop. My great friend Katherine, who is also a melanoma survivor and my personal consultant when it comes to make-up and skin care products, did an interview with Paula. (How cool is that?) Kat is also the one who introduced me to Too Faced (so you KNOW she's fabulous) and got me hooked on Paula's reviews. And today we have the incredible opportunity to get Katherine's interview with the amazing Paula Begoun here! Enjoy! (You can thank me later...)
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K: As a makeup artist and fellow melanoma survivor, I've been reading your books and using Beautypedia.com as a resource for many years now. In your opinion, how do we get more people to use sunscreen?

PB: This is tricky because lots of people love the sun and getting tan. It is hard to discourage something that feels and looks so good. What many organizations and people like me have been doing is just reminding people what is in store for them if they aren't sun smart. That is all you can do, just like it is for cigarettes.

What do you think about the nano technology use with sunscreens?

The only two sunscreen ingredients this effects is titanium dioxide and zinc oxide because these are the only two sunscreen actives that have been broken down into nano particles. There is no benefit of nano technology as far as effectiveness is concerned, these excellent sunscreen actives are effective in either form. In terms of safety, this is a very complicated question because the risk associated with nano technology is theoretical and the benefits are also theoretical so everyone is just guessing. I tend to err on the side of taking little to no risk especially if there is no benefit.

You list many sunscreens as great in your www.beautypedia.com, can you name 5 good ones for our bloggers that give broad spectrum coverage?

There are many! Here is a range:
-Estee Lauder Day Wear Plus Multi Protection Anti-Oxidant Lotion SPF 15, for Oily Skin ($38 for 1.7 ounces)
- Good Skin All Right Oil-Free Sunscreen SPF 30 ($12 for 1.7 ounces; available exclusively at Kohls)
-Neutrogena Age Shield Sunblock SPF 45 ($9.99 for 4 ounces)
-Almay Sun Protector for Body SPF 30 ($8.99 for 4.2 ounces)
-Bull Frog Sunblock Lotion, Superblock SPF 45 ($8.99 for 5 ounces)
-Vanicream Sunscreen, Sensitive Skin, SPF 30 ($14.95 for 4 ounces)
But there are many, many more than these!

How much sunscreen should a person use for their whole body for true SPF protection?

There are "measuring" rations you can use, but that is far too complicated for most anyone to deal with. Rather, what people need to remember is to apply sunscreen before they go outdoors during the day and to apply it LIBERALLY! That it is crucial to apply it generously, which is why expensive sunscreens can be dangerous (because it can discourage people from liberal application.)

There has been discussions within the medical community to changing the way sunscreen are rated, do you have any comments on that?

That’s because the SPF number is only about UVB protection, there is no rating yet for UVA and the UVA rays are more damaging than the UVB rays.

Overseas there are more options regarding sunscreens than we have in the USA, why is that?

The only difference between sunscreens overseas is they have use of two additional UVA protecting ingredients than we do which are Tinosorb and Mexoryl SX (also know as ecamsule which is available here in a few L’Oreal and Lancome products). This is a regulatory issue involving how our FDA approves sunscreen active ingredients which is more stringent than overseas.

I know that you and some scientists feel that a good mixture of antioxidents help fight free radicals which can cause damage to the the skin. Do you think a combination of sunscreen chemicals and antioxidents would be good?

Absolutely!!! They just tend to be more expensive. What is most important is using sunscreen- the antioxidants just add benefits, they aren’t crucial.

According to the Tanning Bed Association, Tanning beds are a safe, effective way of getting vitamin D, how do feel about their advertising to teens and young adults?

That is like suggesting smoking cigarettes are a good way to relax or relieve stress. Further, it is UVB rays from the sun that trigger vitamin D production. Tanning beds typically emit 95% UVA and 5% UVB so it isn’t an effective source in the least. There are far healthier and more effective ways to get vitamin D then something that has a good deal of research showing it increases your cancer risk (minimal sun exposure—sunscreen does not block vitamin D or via supplements).

Thank you so much! I'm a huge fan of yours and love your makeup line and you are always so informative.

I'm also interested in finding out what you think about the FDA trial drug Dimercine, Dr. Yaroush and AGI Dermatics. I just read his book, and I thought it was interesting. He didn't always agree with some of the other books I read or even my own dermatologist, Associate Professor of UT Southwestern school of Medicine, Dr. Farhad Niroomand, but I still thought it was interesting from a cosmetic chemist point of view about sunscreens and DNA repair. I would love to interview him also!

Dimercine is Dr. Yaroush’s ingredient so his opinion is, at best, biased. The research about Dimercine is, at best, limited and there are other ingredients that potentially have this function so Dimercine is hardly the only one, but Yaroush would have you believe his is a miracle (but then you can get a lot more investors, media attention, and consumer interest if say you are selling a miracle then just one of many ingredients with only potential functionality).

-Katherine Bates

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Other articles:

Kat found these 2 of real interest-

* A story by CNN Study: Some Sunscreens overpromise on Protection

* What's the Story? Health Claims Against Cosmetics How Do They Look in the Light?

* And here's a story on Paula that I really liked: Paula Begoun: A Consumer Advocate

Nine Ways to Find Peace of Mind

1. Start a blog and meet the most amazing people on earth.
2. Try to listen to what they say and internalize it.

The other 7 are hopefully coming soon.

Silence is golden. And duct tape is silver.

My life in movies:

I sit down to write, and the truth is- it's difficult to.
I think to myself, why is this so difficult? You love to write. You write all the time.
Except, my voice says, you really don't. You only REALLY write when you feel connected.

And the big ball drops in my stomach.
And the guilt wells up in my chest.

Haven't we been over this already? We figured this out already. It's already ready already.

It's like all those movies we love: Jerry McGuire and Pretty Woman and Bridget Jones, but in all those movies it's a traditional 3 parts: the set up, the conflict, the nice and neat wrap up. Nice and neat with no strings left dangling, 2 hours and everything is resolved.
And I don't have to say that life isn't really like that, because we all know that already.

I heard someone say today that the love we hold back in this life is the only pain that follows you when it's over and you pass to the other side. It's tough to think that- that in those moments when I think, "just say it," and I'm fighting the instinct to be vulnerable- that all those moments are the ones that will follow me after death.

Allow me to just state the obvious here: life is messy and just like my day today, never wrapped up nice and neat. And the truth is, as much as I hate to admit it, I face my fears every time I sit down to write this blog, because to write it is to revisit what I thought I was already over.

I'm not over it.

I revisit cancer fears, and fears of morality, and the hatred I have that my body is so vulnerable, and the pain that I feel whenever I think about how my leg will never be the same. I refuse to work out most days because it's so hard for me to mentally deal with the physical pain that I fear will be there for the rest of my life. The limits that I don't want to be there.

And then, like American Beauty, I tell myself to just breathe. And to stop fighting. And to just realize how awesome this one little tiny moment right now is.

And right now is a good moment.

I have so few free moments these days- but there are 11 school days left so there is hope that I'll get back to posting regularly.

But instead of getting all wrapped up in that, let me just throw out the old adage that every moment is the most important moment of our lives, so as I write you and bid you goodnight, I send out gratitude that there are those of you still hanging in there and reading this blog and that I can share that gratitude with you.

For now, goodnight.

-MM

"One good thing to remember is that giving thanks- expressing gratitude- generates growth. And one way to ensure that your growth is easy, effortless, touched by grace, is to be grateful for the difficult circumstances and situations in your life. The harder it gets, the more grateful you should become. The more painful you believe it is, the more grateful you can become. And one way is to simply affirm in the midst of your difficulty and darkness I can hardly wait to see the good that will come forth from this experience, and for the strength to endure to the end, I am so grateful." - Iyanla Vanzant

It sounds like a sexy hamburger

My mind is saying, "Just write," even though I don't quite know how to say what I want to say. I thought I'd start this post like most bloggers this time of year, writing about my resolutions and everything that happened in the last year that I learned. But what is really on my mind is faith. Faith not exactly in the religious sense, but more of in the confidence or trust sense. Like the way that I have faith that the sun will come up tomorrow. It's not something I question, and it has nothing to do with spirituality. I know it through and through without any doubt that the sun will be there when I wake up.

The question I suppose that you're asking yourself is why is faith on my mind today. Or, maybe that's just my question to myself. To be honest, I'm not sure. Even if I am thinking about it, I generally a.) am not religious or outwardly spiritual and b.) not open enough about it to post it on my blog. Yet lately, I can't get it out of my head. I've been thinking alot about what I know for sure and what I don't know. About the old me. About what I used to feel like I knew and what has changed. About how facing the possibility of death changed all that. About purpose and hope and about faith. I guess, also, I've been thinking about faith because of pain/health issues lately, and the way I feel like I am being tested by them. I know that sounds a little cheesy and confusing, but let me explain. If I was pre-cancer me, I would say that everything that has happened to me, everything good or bad that I have experienced up until this moment, had happened for a reason. Like fate. They were all experiences I needed to have in order to learn the lessons I learned to be the person that I am today. No regret or grief, just acceptance. And pre-cancer me would say that this very moment I am experiencing right now is the only moment I truly have. Even in this moment, anything could happen to me, but I can control how I react to whatever happens, and that is all I need to be concerned with for now. From this moment, I can go anywhere I need to go in life. And if my life were to end 2 minutes from now, well, then, at least I appreciated living in this moment up until my last breath.

I look back now and miss that peace that pre-cancer me had. I realize now that (perhaps stupidly) I feared so little then and I had so much faith in what I believed. I knew each moment was precious, and I tried to really soak it up and appreciate it for what it was. I remember a particularly good time in my life when I had a big window in my bedroom. I used to wake up in the morning and feel so lucky to be looking out of that window, to have the opportunity to appreciate the sun on the grass or the rain falling or whatever happened to be going on right then. I remember I used to say a silent little prayer of thanks for that opportunity before I even got out of bed and started my day. I felt happy just to be aware of what was going on outside that window.

That was pre-cancer me. I was a pretty content person back then, and I think a lot about my old thought patterns. See, the thing is, I've realized recently that there was nothing I had before cancer that I don't have now. All the possessions, all of the love, all of the friends, everything-- I have as much now (or, in actuality, more) than I did back then. I think about that and I know I need to get back to thinking that way. That was the only difference for me- the way I used to think about things. For that reason, I've been thinking about pain and illness in a new way, like, "what am I supposed to be taking from this? Is this supposed to be a lesson I'm learning?"

A funny thing happened a few weeks ago. I was telling a new friend about my cancer experience, and when I had finished telling her, she said to me that since I am still here today, I must be here for a purpose.


Now, to believe privately and personally that each of us is here for a reason is completely different from hearing it from someone you barely know. For one thing, it's frightening to hear it. It sets up an expectation that you have to achieve something grand, and yet you have no idea what that thing is. And, for another, to have the kind of courage to openly state such an intimate detail of one's personal beliefs without any reservation or fear, quite honestly took me aback. Even if I did know how I felt about it, I don't know if I would've had the nerve to have the conversation with her.

So later, alone, I thought about it. Do I believe that, too? Are we all here for some divine purpose? And pre-cancer me answered, "yes." To which present day me said, "Oh, well that's friggin' great. Sorry, it's not my day to care."

I'm not sure what any of that has to do with my current health issues. I've been keeping a chart lately of my pain level just to see what it's really like. The chart has the hours listed throughout the day for each month, and when I'm in pain, I go to the chart and type it the level from 1-10. I think I have put this off for quite some time because I was hoping sort of foolishly and naively that maybe it would all just kinda disappear and I wouldn't have to deal with it anymore. But the results are in, the votes have been tallied, and I'm sad to say that the reality is I am in a good deal of pain and/or malaise on a regular basis. Bobby probably could've told you this months (or maybe even a year) ago, but hard-headed me has insisted on keeping up the pretense that "I'm fine" and/or "Everything is fine." That being said, I feel like now that I can admit that I'm experiencing this pain, maybe I can move forward with it. Maybe now I can deal with the reality and gain what I'm supposed to gain from it, which is, hopefully, the ability to live fully in spite of it.

I saw an endocrinologist on New Year's Eve (before the partying began, luckily) and although I am hopeful that all of my issues have been because of one little gland, in all actuality I think that I need to prepare myself if that is not be the case. I could be wrong, but she was very candid in telling me that Interferon has a way of causing "a syndrome of chronic fatigue for periods of time that are indeterminable." So, in other words, this may be an endocrine issue and I guess it may not be. And, if it's not, it may get labeled as depression (every doctors' favorite "I have no idea" answer) or chronic fatigue. I'm already being treated for depression, and although I know that chronic fatigue is finally being accepted as a real condition by doctors, I also know that treating it is still an art form that takes a lot of trial and error.

I guess what I'm trying to say though, is that either way, I'd like to be okay with this. I'd like to be able to say that I am mentally and emotionally going to be able to live my life fully, no matter the condition, even if I am not able to physically live fully. I want to be that way. I am hoping that my new goal to view things as more of an opportunity than a burden will help me get there.
Because in all honesty I'm not that cancer survivor that says they have learned so much from their experience and diagnosis. I still get mad in traffic, I still dread Mondays, I'm less "enlightened" now that I was before.
But I really WANT to be that happy cancer survivor. I've had my time to grieve and I'm ready now to be the person I want to be, to live each moment fully again. And I think that if I can do that, then maybe I'll remember what it was like to know that I had a purpose here. I want to feel that way again, to feel optimistic about my life and everything that has happened. To be OBSESSED with living. And to not only fulfill my purpose, but to appreciate all the moments in the quest to find it. And to wake up in the morning and say a silent prayer of thanks every day.

I'm just hoping that if I want it this badly, then maybe I can make it so. That's what the old me would've said, at least. So, for now, that's all I'm going to let myself believe.

-MM

A small view into the life of melanoma

Guest post, Bobby here.

Holy Crap!!! I have a little story for any of you cancer survivors out there, heck even those of you that are loved ones, friends, family, pizza delivery guy, whatever.

I have a little story for you and it goes something like this. It may wander, but it has a point, trust me.

When I was but a little lad my dad took me on a fishing trip. On said fishing trip, I, being the manly type (not really) took my shirt off for the day. If you don't know me, I'm a freckly type kid, now freckly type adult. Yes, I got a sunburn, a BAD one on that fishing trip. My shoulders and back were especially toasted. I got home and my mom freaked. She was screaming about skin cancer and how you don't want that. I thought, eh, no big deal.

Flash forward to a couple of months ago when Lori and I were checking each other for moles, let's keep it clean people. Anyway, she said there was a couple I should have checked. So, I made an appointment with her dermatologist, the aforementioned Dr. Beautiful in a previous post.

I rescheduled a handful of times and I know why. I was scared. "What if's" were running through my head. So, I finally made an appointment and kept it. I told Dr. B. the story and he said take off my shirt, unlike Dr. Gomez who can have your pants off in under 2 seconds...I digress.

He takes a look and says "Oh yeah, we've got a couple of winners here. They need to come off." Now, if we compared pain tolerances, mine would be in the wimpy section while Lori's is in the tough as nails section. Anyway, I didn't know he was going to do it right then and there. But he did. He froze one off that's a rather large area on my shoulder, said it was fine and it will fall off. Still hasn't, but I think it's getting there.

But the other one on my lower back was suspect and he wanted to cut it off and send it out for diagnosis.

Now, this is where this blog will tie together. They said in about a week I would know the results and I'll be honest, I tried not to think about it. So, a week later I get a phone call from a number I don't recognize which I don't answer, standard procedure. But as it's going to voicemail I get this nervous sensation and I thought it was the Dr.'s office calling. It was.

Here's what the nurse said on my voicemail: "Hello Mr. Frrrriiissskkeee, this is the nurse from Dr. Beautiful's office. I need to talk to you about your results from the mole we sent off for testing."

AAAAGGGHH!!! My anxiety went through the roof. The last time I had to wait for results like that, I of course didn't answer and on my voicemail they said everything was fine.

This was crazy anxiety. I don't think I've experienced it before like this. So, I quickly call back and the nurse is at lunch. So, now I have to wait until she gets back.

Heart pounding, check.
Nervous sweats, check.
Freaking out...priceless

When she calls I'm practically shaking. She tells me it's mild dysplastic nevus (spelling?) and everything was fine, but to keep an eye on it. whew.

What I'm trying to get across to people who don't have cancer is, I cannot believe the amount of anxiety something like this produces. It was enough to make me a nervous wreck for one tiny mole. And you people here that are fighting cancer, waiting for diagnosis, updates, pet scans, MRI's, doctors reports or even just waiting after treatment... Well, it takes a special person to take all of this in stride and us people need to realize how much of a toll it can take on our loved ones fighting this crappy disease.

Lori's getting ready to go in for surgery and I'm still dumbfounded by how she can take this in stride. I would be a nervous wreck, instead I'm in denial, that's supposed to be funny, but true.

I have (another) whole new take on how things are.
I hope that makes sense.

A quick Lori update... She'll probably be in 3-5 days depending on how things go. The wonderful Mandy, best friend of Lori's and all around good person is coming in from Cali to help out.

After Lori recovers she's heading to Cali with Mandy and hopefully we're all going to meet up in Vegas sometime before school starts back up.

Lori sends her love. To all of the people out there who cancer has affected, I say this,

F CANCER!

Peace,Bobby

You don't have to call me darlin', Darlin.

Allow me to go full-on hippy on you today.
The truth is, despite the malignant melanoma, I know what I'm supposed to know. I know that if I don't take the time to enjoy every moment, a whole lifetime can suddenly sneak by. I know that ultimately, death is nothing more than another experience in a long line of experiences. I know that being aware of every emotion I feel and being true to those are what keep me happy and make me feel sane. I know that seeing things exactly as they are is the means to daily peace. I know those things.

And yet somehow ugly malignant melanoma poopie head still has a knack for taking control of my thoughts, of my actual BEING, to the point where I feel that I don't even know who I am. Literally I think to myself sometimes, who am I? Because when it boils down to it, I'm not who I thought I was. I thought I was a fighter. I thought I was the type of person that could come out of this shining, with renewed vigor for life and a stronger conviction for... I don't know, something. I look back at those thoughts now and I just think about how naive they are. Yes, I am a fighter. But would I "fight"- risk my quality of life for a year for a 6% increase in chance of survival? No. Never. Am I coming out of this experience shining? Yes and no. No, I'm not the spokesperson for unprecedented optimism. And yet I don't think that's a bad thing. I think I actually see this for what it is, and acknowledge how painful it is not only to be diagnosed, but to see friends and family and people you love go through horrible experiences. Not even horrible like death (although a painful death is a given). But just horrible experiences like dealing with the fact that treatment hasn't worked or that the recurrence has spread through their body. Yet I do see that life is different for me and changed and, I admit, in some ways better. Not better like I thought it would be, but still, better. There isn't a time I talk on the phone or hug someone goodbye or even just talk to them that I don't think, "This could be the last time I do this." Even with cancer-free people I think this. Some may call this morbid, but I believe this is the reality of this life. We just never know what could happen, and I know this from experience. Lia. She was there one day, and it seemed the next she had moved in with her parents, then just like that she was gone. Like that. Two weeks. A whole life whisked away from me. A bright star I never got to see again. Who knows what could happen to me or anyone else just like that? In Tibet, there are stories of monks who pour the water out beside their bed before they go to sleep because they know the moment of death could come at any moment. Why plan on being thirsty when we have no idea when this life ends? It's an amusing thought and yet at the same time I think that's how we should all be living. Why not embrace this impermanence? Isn't that what living is about?
I think a while back I told you that I had dreamt of my dad. This had to be a year or so ago. But when I woke from that dream I had the most insanely peaceful and warm feeling. Bobby was laying beside me and I was trying to explain the feeling- a warmth I could not express, a peacefulness and an ease that would not allow for any anxiety or regret. Slowly, as I lay there, the feeling crept away, and the normal feelings of isolation and futility which we often don't even realize we have took over. I didn't think much of it. In the last few weeks I had the same experience again, but this time it wasn't with my dad, it was just some sort of shadow person. And the feeling was the same again- warmth, peace, calmness, comfort. The feeling that everything was truly going to be alright. The feeling that all the worrying I do and the guilt I feel are such complete wastes of precious time. When I tried to explain it to Bobby, what I finally said was, "It was like love. Like realizing for the first time what love feels like and what it feels like to be unconditionally loved." Warm and glowy and wonderful, like nothing can do you any harm. I even said to him, "that's why people that have near death experiences aren't afraid- because they have felt that feeling." This is part of what I know. I know that this type of feeling is available to me- that I can find this peace in myself if I embrace what I know. I know that if I don't take the time to enjoy every moment, a whole lifetime can suddenly sneak by. I know that ultimately, death is nothing more than another experience in a long line of experiences. I know that being aware of every emotion I feel and being true to those are what keep me happy and make me feel sane. I know that seeing things exactly as they are is the means to daily peace. And knowing all of this brings me closer to that feeling of ultimate love.

-L

Jack Sparrow is my co-pirate

I really have tried to blog the last few days, but I think I needed the time to process things. I'm here now, though with an update. I haven't even had a glass of wine, which is a good thing because I'm on my lunch break. Sacrificing good sandwich time for the betterment of bandwidth everywhere. Or something like that.

I saw the surgeon a few days ago. He is a young guy, but I have to say that despite his youth, he immediately impressed Bobby and me and he took all the time I needed (another Parkland no-no) to answer questions. He pulled out the Grant's Anatomy book to show Bobby and I where exactly this iliac node is, how close it is to the bowels and the aorta and such, and told us what kind of surgery this would be - "not one requiring a lot of finesse," as he put it, but a surgery that would require 3-5 days in the hospital and be very hard on my body, as I'm sure most surgeries are. "A questionable surgery when you consider the level of morbidity associated with it," I think he said. Essentially, he wants to confer with the radiologist and make sure this node can be totally and utterly fried crisp before we make a decision, but if it can be, then we'll take that route. The surgery, yes, would give us a chance to actually dissect the node, but, on the other hand, my leg is swollen enough already, and I'd like to lead as normal a life as possible (analap, for your acronym people out there). With consideration as to how the lymphadema would increase, he said that by removing this node and even just minimal lymph material surround it, he suspects my leg will double in size. So, let's just hope that we find out the radiation can be targeted and strong so that surgery is a definite out.

As far as emotionally, I don't really know what to say. I COULD say a lot of words, but none of them would make my mom proud, and just in case she reads this blog, I think I should hold off. I left the hospital yesterday saying, "I just want to be left alone," as in, I just want cancer to go away and never come back so I can have a normal life. But this isn't normal life, anymore, as I've been reminded. This is "The New Normal." So, I'm trying to just deal with that. In a way, I don't know why I'm so broken up about all this.

Uggh. None of this makes sense. Hopefully the next installment will. I'm gonna watch RENT now. That always helps. :)

-MM

It's probably nothing

I guess I'll get right to the point.

The good news is I met the new oncology doctor on Friday, and he's great. Great. The man is a genius, and he's very open to my opinion and the way I think things should be done, and what I want and need as a patient.

Bad news is he thinks he's found a lump in my stomach, a lymph node that he believes may be the size of a small egg. We're both pretty sure that it's scar tissue from earlier surgery, but just to be safe, I'm getting a PET scan and a CT scheduled.

So, not sure what's to say. I am scared, even though I know that I probably shouldn't be. I should be just resting in the fact that this lump is very, very near my surgery site and that the news will come back at as nothing. Nevertheless, it is nerve wracking. I guess because this is my first scare, it's to be expected. I'm mad at myself for not taking more comfort in the fact that the probability is in my favor.

Ugh. All these emotions, all over again. And anger. Anger that this is my life. Anger that I have to do the dr. appts every three months. Mad that I still break out in hives when I have to go there. Mad that everytime I go, something like this could happen. It's like at any point it could all go downhill. And then mad at myself for all those feelings, mad at myself for feeling sorry for myself when so many others have it so much worse. Mad that my friends are dying and I'm complaining about a lump.

My oncologist and I talked for a long time about this- like 45 minutes about melanoma and what having it means. It's an aggressive cancer. And, unlike some cancers, it almost always returns. Sure, the chance of it lowers after about 15 years of no recurrence, but the fact is, it's not one of those cancers you can be pretty sure is gone. So, there's that. Then there's the fact that the only treatment once interferon is over is IL-2, and that's definately not a sure thing, either. It's a help if you're a healthy person, like I am. If you're healthy, it's about a 1 in 5 chance. But if you can't handle the whole treatment, which, let's face it, is tough, then it's only about a 6% chance. Not to mention the potential damage it can do to your heart, liver, etc. I'm not sure I'd do IL-2 if the melanoma returned. In fact, I'm pretty sure I would not. So, as my oncologist said, "when it returns," he says to me, "we can take measures to delay death, but not significant measures. Once it's back, life expectancy is 9 months. A delay of a few months or a year is possible, but there's really nothing we can do to stop it." That's a real slap in the face even on a good day. But a day when you've just found a lump, it's enough to make you crazy. And, by the way, you can just call me Crazy from here on out. I'm going crazy with all this to think about.

I'm checking into a vaccine that has had great success overseas, but is not available here in the U.S. Not available to humans, that is, but to dogs. From what I hear, the shot is about $60g's and pretty effective (1 in 4). So it's not like my options totally suck. I mean, I guess, at least there's hope.

That's about it. I'm obviously a bit down. But I know I can count on good news soon. And, this is good for me anyhow, to deal with these things. Good for me, but not easy.

-L

I also think you're more than just fat

When I was 22 years old, I was "hospitalized" for 2 weeks for severe depression. "Hospitalized" as in I was institutionalized for major severe depression. I don't mind telling people that; in fact, it's been 10 years now, and I can't even remember ever having shame about that- even though, at some point, I'm sure I did. But I know that it's a part of me and my past, and because I still suffer from depression sometimes, it helps to remember that time. In fact, I learned so much there that I use in everyday life. When I tell people that and they seem shocked or embarrassed for me, I makes me so sad for that person. It must be so hard for them when they have to admit how human we all are.

That experience, believe it or not, was the beginning of my "real life," the one I've been living for quite some time now. It led me to what I do, what I am, how I believe.

My hope is that I will walk away from cancer with this sort of attitude. I guess because I had a sort of life changing experience so early in life, I haven't exactly had the same view of cancer as a lot of people I know. I still get mad in traffic, I still haven't found my greater cause for having gone through this. Is that negative? I'm not sure. The Boob and I both believe that a lot of good has come out of this, and it's not like it hasn't changed my life. But I guess I'm just not over it.

I hate it. I hate cancer. I that I had it, I hate that it's changed who I am. I hate that I don't know how to be who I was. And I'm pissed.

Where am I going with all of this? Well, I'll tell ya. All these thoughts have led to a lot of reflection, and I finally broke down and just decided to get some good ol' fashion therapy.

So I found a therapist. A great therapist, actually, and even though I've only chatted with him once, it made a tremendous difference. He even has some experience counseling cancer patients, too. I'm really hoping this will help out this whole process. I mean, hey, it can't hurt, right? So, yeah, I'm stoked. I'm in therapy. Let the mother f**king healing begin.

Oh, but that's not all. There are changes abound going on up in this mug. I also started a running log online, and you gotta check it out. I'm on a roll. Seriously. I'm the next big thing in fat girl running.

Bobby and I also had some excellent advice the other day when we were both bitching about the state of things in these United States. Some good friends of ours are planning on moving to Costa Rica, and it just might be the spot for us, too. Did you know they did away with their military and put, literally, all of the money they were spending on education instead? So, as poor as this country is, it's got a 100% literacy rate. Is that awesome? How can you not love this country?

Also, it's one of the most biologically diverse and ecologically friendly countries in the world. And, this is the kicker- it's warm all year round. Consider me a Tica, hooches.

Amazing, isn't it?
How something so awesome can fall in your lap? I'm personally excited.

I've also started the quest for a new tattoo. I'll keep you posted on that, but the prospects are almost as exciting as my new life in Costa Rica.

That's it for now... peace and porkchop grease-

-MM