All we hear is Radio GaGa

The title means what, you ask? It's only there as part of my obsession with Queen of late. But why I'm really here is to catch you up with this info:

1. Check out the new blogs listed to the right-- I've gotten a few emails in the last month informing me of blogs dealing with melanoma and I'm happy to pass on the word (including one at the Ulman Cancer Fund by our own Redheaded Bald Chick!) If you find any others you'd like to promote, be sure to send them my way and I will add them to the roll doggettes.

2. I also heard from Andrea at Paula's Choice and she was gracious enough to write and offer all of us a sneak peek at Beautypedia.com! All you have to do is go to the site, click on subscribe, and enter “blogfree” as the coupon code. No credit card required! You get 2 free days to search over 40,000 cosmetic reviews and browse around the site. Yay! They are also starting a blog at Paula's Choice and are asking readers to advise as to what they believe it should include. Feel free to comment here. They also have a Facebook page is you want to reach them there. A special thanks to Paula Begoun and Andrea.

3. And it's about f%@#ing time, but finally there is a major movement to raise funds for cancer research. If you've been unda dat rock, let me just tell you a little about Stand Up to Cancer, which even has a catchy little acronym, SU2C, as all good causes should. Actually, just watch this, because they say it better than I can:



If our government didn't have their heads up their a&&es, then this wouldn't really be necessarily, but nonetheless people have decided not to sit around and wait for things to get better, and rather have made the decision to do something about it. Good for them! Gandhi would be so proud.

It's not too late to give or to pass on the message! SU2C.org

4. This is completely uncancer related, but do you know about Shock Of Pleasure? Bobby's long-time friend started the group, and they've really taken off here in Dallas. We went to a show the other night and I asked Kelly, the beautiful lead singer, to sign my boob. Of course, she said "Yes!" and that I was the first boob she's ever signed. Wow! I deflowered her. Anyway, check out their stuff on iTunes. I'm not typically an electronic music lover, but this stuff is way cool. Great for those chilled evenings.


5. John McCain's melanoma is in the news a bit, too.

6. There's also some potentially good biomedical news about melanoma treatment.

Keep in touch, peoples.
-MM

You're not going to effin believe this.

Dear idiot,





Let's not even go into what a spit in my face this postcard is.
I could go into the facts, but I have a feeling you're not reading this blog.

I will say hope that you are very, very young and naive. Otherwise you could be throwing a year of your life away to a horrible, painful treatment. Or you could be throwing your entire life away for --- wait for it--- a trend.
That's right.
The equivalent of dieing for a mullet.
Or a slap bracelet.
Or any number of other bad fads.

It's called spray-on, and you'll live if it's uneven.

-MM

What a sad, simple life you must lead.



And for those of you who do pride yourself on being more informed, I'll present the facts. Tell your friends! And even idiots you despise like the one above who made the postcard.

The facts:
*Skin cancer is the #1 diagnosed cancer, and the third most commonly diagnosed cancer among women 2o-39 years of age.
*More than 90% of skin cancer is caused by sun and tanning bed exposure.
*Each hour, one person dies from skin cancer.
*One in 5 people will be diagnosed with it.
*One in 41 men and one in 61 women will develop melanoma in their lifetime.
*The rate of melanoma, the deadliest form of skin cancer, has more than doubled between 1973 and 1996.
*Melanoma is more common than any non-skin cancer among people between 25 and 29 years old.
*An estimated 7,400 deaths from melanoma and 2,200 from other skin cancers were expected in 2002 and more than 7,800 died from melanoma alone.
*The death rate from melanoma for men is almost twice that of women due to late detection *Melanoma is now the fastest growing cancer in the U.S. here have been no significant advances in the medical treatment or survival rate in the last 30 years.
* One blistering sunburn in childhood or adolescence more than doubles a person's chances of developing melanoma later in life.
* Exposure to tanning beds before age 35 increases melanoma risk by 75 percent.
* On an average day, more than one million Americans use tanning salons.
* New high-pressure sunlamps emit doses of UVR that can be as much as 12 times that of the sun.

And for our finale....
*In women 25-29, melanoma is the primary cause of cancer death, and in women 30-34 it is the second most common cause of cancer death.
*In the U.S. your chance of getting melanoma in 1940 was 1 in 1500. By 2004, it was 1 in 67. By 2010, scientists predict it will be 1 in 50.
*The incidence of melanoma has increased 690 percent from 1950 to 2001, and the overall mortality rate increased 165 percent during this same period.
*If caught in the earliest stages, melanoma is entirely treatable with a survival rate of nearly 100%. If untreated and allowed to spread, there is no known treatment or cure.

Doctors don't regularly screen for melanoma and patients often find their own so go to our "Examine Your Skin" page to do yours NOW!

What to watch for: A change in size, shape or color. The features of change to watch for in moles are the A, B, C, D and E’s of detection.

Asymmetry — Two halves of a lesion that are not the same
Border — Borders of a lesion are irregular, scalloped or vague
Color — Color varies from one area to another, including shades of tan or brown as well as black, blue, red and white
Diameter — A lesion that is greater than 6 millimeters in diameter, about the size of a pencil eraser
Evolution — Lesions that change or evolve, or is ELEVATED or raised above the skin and has a rough surface

You should also watch for the following skin changes:
A mole that bleeds
A fast-growing mole
A scaly or crusted growth on the skin
A sore that won't heal
A mole that itches
A place on your skin that feels rough, like sandpaper

Let's be safe out there, people.

-MM

Silence is golden. And duct tape is silver.

My life in movies:

I sit down to write, and the truth is- it's difficult to.
I think to myself, why is this so difficult? You love to write. You write all the time.
Except, my voice says, you really don't. You only REALLY write when you feel connected.

And the big ball drops in my stomach.
And the guilt wells up in my chest.

Haven't we been over this already? We figured this out already. It's already ready already.

It's like all those movies we love: Jerry McGuire and Pretty Woman and Bridget Jones, but in all those movies it's a traditional 3 parts: the set up, the conflict, the nice and neat wrap up. Nice and neat with no strings left dangling, 2 hours and everything is resolved.
And I don't have to say that life isn't really like that, because we all know that already.

I heard someone say today that the love we hold back in this life is the only pain that follows you when it's over and you pass to the other side. It's tough to think that- that in those moments when I think, "just say it," and I'm fighting the instinct to be vulnerable- that all those moments are the ones that will follow me after death.

Allow me to just state the obvious here: life is messy and just like my day today, never wrapped up nice and neat. And the truth is, as much as I hate to admit it, I face my fears every time I sit down to write this blog, because to write it is to revisit what I thought I was already over.

I'm not over it.

I revisit cancer fears, and fears of morality, and the hatred I have that my body is so vulnerable, and the pain that I feel whenever I think about how my leg will never be the same. I refuse to work out most days because it's so hard for me to mentally deal with the physical pain that I fear will be there for the rest of my life. The limits that I don't want to be there.

And then, like American Beauty, I tell myself to just breathe. And to stop fighting. And to just realize how awesome this one little tiny moment right now is.

And right now is a good moment.

I have so few free moments these days- but there are 11 school days left so there is hope that I'll get back to posting regularly.

But instead of getting all wrapped up in that, let me just throw out the old adage that every moment is the most important moment of our lives, so as I write you and bid you goodnight, I send out gratitude that there are those of you still hanging in there and reading this blog and that I can share that gratitude with you.

For now, goodnight.

-MM

"One good thing to remember is that giving thanks- expressing gratitude- generates growth. And one way to ensure that your growth is easy, effortless, touched by grace, is to be grateful for the difficult circumstances and situations in your life. The harder it gets, the more grateful you should become. The more painful you believe it is, the more grateful you can become. And one way is to simply affirm in the midst of your difficulty and darkness I can hardly wait to see the good that will come forth from this experience, and for the strength to endure to the end, I am so grateful." - Iyanla Vanzant

A clear conscious is just the sign of a bad memory.

Thank you, JayBee, for the sweet reminder to update.

I've been a bit thoughtful today and lately, thinking of work and if I want to keep the job I have, thinking about being blessed and about mere survival and about the past. And I have been thinking of the words of a very dear friend of mine (who is also a cancer survivor) that once said that melanoma is a scary thing but that we can find hope where dreams remain and where cancer cannot go.

And that's kinda what these last few weeks have been about- about looking around and seeing myself again, that inner resolve that I thought I'd never lose that just went into hiding for a bit, I guess. And the part of me that loved and allowed love in. I guess I thought I'd lost it, that the bitterness had completely replaced it. But it too just needed dusting off. About being open and vulnerable even in the midst of being scared to death that your vulnerability will come back to bite you. About the people that were there when I was so distant, knowing even then that all they wanted to do was help.

I've been reminded this week of who I really am and how I had lost some of myself with every diagnosis and treatment, and in the year of recovery after. Before that diagnosis in May of 2005, I would've said that there was nothing that could make me forget or compromise who I was. But knowing what I know now, I would say that illness can deplete you so that it is nearly impossible to not lose that. Would it be different if I had a recurrence now? God, I hope so. I hope that I have learned enough to know what to hold onto now and what the important things are. Even if not, I have learned the beauty of stillness and what it means to me. That I don't have to be afraid of it or be afraid to NOT be busy. I have learned what the pieces of myself are that will never change- my love for my dad and how I feel about my friends, how kids keep me grounded and that I love the way words can be strung together in a manner so amazing they can change the way a person feels. With all these realizations and all the questions, I can finally say that I have definitely found myself again, waiting in a place I never would've thought to look before. While I was busy trying to survive, I had wandered away. Everything was changing, and I couldn't figure out if I was even the same.

And while I was waiting to be found again, I was given a gift. It was the gift of support from people who helped carry me along, people who had once been where I now found myself. And I promised myself that if I made it through, that I would do the same for someone else- that I would do even more for them than was done for me, which was a lot. Believe it or not, the time has come, and I feel very graced by the opportunity. Because when you've been through it, you never want another person to do it alone for one tiny second.

And thus is life. I crave that time of year when I worry about nothing and instead roll thoughts and ideas around, but those days are still a few weeks away. For now, I have to make the best of what is chaotic and hectic- plans that were supposed to come through for the new warehouse are dragging along and I have been working harder than a sniffer dog in Amsterdam. Not to mention the buzz of regular life. I'm looking forward to vacation. Reading a book for Pete's sake. Taking a walk. Sleeping late and having a long lunch. I miss it. But I am also finding a really good feeling about all this limbo I've been in and just kind of enjoying these weird in-between stages. After all, when they're gone, they're gone, and then I'll be looking back saying, "I wish I just would've relaxed and enjoyed that time for what it was."

-MM

Slow down to speed up

I really want this to be an uplifting, positive post. I really do. I've been reading another cancer survivor's blog and I have been so apsolutely amazed by the support she is receiving from the circle of friends that surround her. She writes about what a blessing they are to her, and I can feel the love beaming from the page. I feel loved just reading it, having experienced that kind of love from my friends. I bask in that feeling, because it is so amazing to have the opportunity to see what the people who love you will do for you. It makes me so grateful for the friends I have and have had and the people that have supported me through my malignant melanoma journey.

And I'm sure that I'm like most people. I'm sure everyone wishes that they could go back to the way some things were before they had cancer. I get caught up in the pity. Because, even though I've made it through so much and I've made amazing friends along the way, I still get lonely when I think about old friends. I miss being able to talk to people that knew me from way back, and wouldn't be shocked by anything I did. And I could see so much of myself in them, listening to where they were in their discovery of themselves. I learned a lot about myself and about life just by really hearing their words. I miss being there for someone else. I miss my young friends, who I could always turn to when I just needed to be free for a while from all the ugly things in my life. Free to think about nothing but fun for one whole evening. But I'm so happy I'm starting to see that ME that was here before melanoma. I really liked that girl. She's finally coming back.

I started looking back through old posts, and found several drafts that I never published. This one was of particular interest and kindof hit on this topic. I think I finally have the guts to put it up here. Plus, it's got a positive message, so it's win-win. One less thing.

Enjoy. :)
--------------------------------------------------
In the beginning, I was surrounded by people who'd say, "We're gonna beat this thing!" and we'd rest assured knowing that I was tough and I'd never let cancer take me. And I think that's how it works: you actually believe in your heart of hearts for a while that your own strength and determination is all you need to survive cancer. And then you come to a point where you just pretend that it is. And then, as time went on, I think we all saw that it was not a fight to survive; rather, it was a war. Ongoing battles, one after the other, all deteriorating morale and forcing us to question our ability to go on.

When treatment began, slowly, those people who were so gung-ho to fight this with you were reduced to bystanders while you lay in the hospital bed waiting out treatment or the side effects. And then you begin to understand that no matter how much they want to fight this with you and be there for you, YOU will be the one who has to do it. You and only you. You will have the i.v. in your arm, you will feel the all the aches and pains, you will be reduced to something you never imagined, and you will be the one sitting in the lead room waiting for the next test. And when the realization of how things really are comes to you, it will be you who will sit in that MRI for next two hours with just your thoughts.
And then they begin to realize it, too. And that's when the first big change takes place, and the ones who can't stand the helplessness that they feel begin to fade like the fog does at dawn: quickly, but in a way that no one notices at first, with it all suddenly becoming clear.
I look back at those times now, when I first began to feel lonely, when I was so confused and hurt by what was happening, and I wish the Me now could've been there to explain. Because now, with some time out from under the cancer cloud, now I feel so sad for them, to be faced with such a scary thing, and to feel so much terror that they didn't know what to do except pretend that it wasn't there. I don't blame them for pretending it wasn't there.
Then I think of the ones who didn't run, and how sticking it out beside me was rewarded by the anxiety of abnormal results of labs, regularly scheduled scans, more scares of recurrences, more tests and surgeries and terrible statistics. It's like melanoma was determined to punish them for sticking it out. And I know I didn't make it any easier, with my own depression and mood swings and inability to cope.
And then finally, when there was only those last few left standing, they had to live through the threat of moving to a stage IV, and they had to hear those words that meant "if certain things come about here, there will be no more choices." That was the finally agony, watching their faces go through that, and feeling the final, flat pull of distance. Like saying good-bye.
And now. Now, if I really wanted to, if I dedicated myself to it, I could actually pretend that none of this ever happened. I could actually go on with life and act like I never had to survive cancer, and that things like that could happen to other people, but could never happen to me. Some days I wish I could really do that, or at least, as a dear friend says, I wish I could "pretend to pretend."
However, once again, out from under that dark cloud of recurrence and the depression that comes from an incessant "what if," now I see everything so clearly, and most days I don't even wish that I had never heard the words "you have cancer." And that's when you know that you've truly made it through. Do you know what it feels like to finally say that and mean it? Boulders, mountains, continents off my shoulders.
I can't believe how much clarity I've achieved just over the last couple of months. It's amazing how much a little alone time has allowed me to heal and to really come to terms with big ol' melanoma. I won't say that things haven't been tough. But I will say that I am blessed to be alive today, blessed to have lived and blessed now to "have arrived." Blessed for the lessons. Blessed to have the knowledge that so many don't have. Blessed to be able to be there for so many people. Blessed to have seen every friend who was there and every one that wasn't. Blessed for my experiences.

I've made peace with my new life. And I've made peace with what my body has put my loved ones through. I never would have chosen it, but I'm glad it was chosen for me. What a blessing.

-MM

It sounds like a sexy hamburger

My mind is saying, "Just write," even though I don't quite know how to say what I want to say. I thought I'd start this post like most bloggers this time of year, writing about my resolutions and everything that happened in the last year that I learned. But what is really on my mind is faith. Faith not exactly in the religious sense, but more of in the confidence or trust sense. Like the way that I have faith that the sun will come up tomorrow. It's not something I question, and it has nothing to do with spirituality. I know it through and through without any doubt that the sun will be there when I wake up.

The question I suppose that you're asking yourself is why is faith on my mind today. Or, maybe that's just my question to myself. To be honest, I'm not sure. Even if I am thinking about it, I generally a.) am not religious or outwardly spiritual and b.) not open enough about it to post it on my blog. Yet lately, I can't get it out of my head. I've been thinking alot about what I know for sure and what I don't know. About the old me. About what I used to feel like I knew and what has changed. About how facing the possibility of death changed all that. About purpose and hope and about faith. I guess, also, I've been thinking about faith because of pain/health issues lately, and the way I feel like I am being tested by them. I know that sounds a little cheesy and confusing, but let me explain. If I was pre-cancer me, I would say that everything that has happened to me, everything good or bad that I have experienced up until this moment, had happened for a reason. Like fate. They were all experiences I needed to have in order to learn the lessons I learned to be the person that I am today. No regret or grief, just acceptance. And pre-cancer me would say that this very moment I am experiencing right now is the only moment I truly have. Even in this moment, anything could happen to me, but I can control how I react to whatever happens, and that is all I need to be concerned with for now. From this moment, I can go anywhere I need to go in life. And if my life were to end 2 minutes from now, well, then, at least I appreciated living in this moment up until my last breath.

I look back now and miss that peace that pre-cancer me had. I realize now that (perhaps stupidly) I feared so little then and I had so much faith in what I believed. I knew each moment was precious, and I tried to really soak it up and appreciate it for what it was. I remember a particularly good time in my life when I had a big window in my bedroom. I used to wake up in the morning and feel so lucky to be looking out of that window, to have the opportunity to appreciate the sun on the grass or the rain falling or whatever happened to be going on right then. I remember I used to say a silent little prayer of thanks for that opportunity before I even got out of bed and started my day. I felt happy just to be aware of what was going on outside that window.

That was pre-cancer me. I was a pretty content person back then, and I think a lot about my old thought patterns. See, the thing is, I've realized recently that there was nothing I had before cancer that I don't have now. All the possessions, all of the love, all of the friends, everything-- I have as much now (or, in actuality, more) than I did back then. I think about that and I know I need to get back to thinking that way. That was the only difference for me- the way I used to think about things. For that reason, I've been thinking about pain and illness in a new way, like, "what am I supposed to be taking from this? Is this supposed to be a lesson I'm learning?"

A funny thing happened a few weeks ago. I was telling a new friend about my cancer experience, and when I had finished telling her, she said to me that since I am still here today, I must be here for a purpose.


Now, to believe privately and personally that each of us is here for a reason is completely different from hearing it from someone you barely know. For one thing, it's frightening to hear it. It sets up an expectation that you have to achieve something grand, and yet you have no idea what that thing is. And, for another, to have the kind of courage to openly state such an intimate detail of one's personal beliefs without any reservation or fear, quite honestly took me aback. Even if I did know how I felt about it, I don't know if I would've had the nerve to have the conversation with her.

So later, alone, I thought about it. Do I believe that, too? Are we all here for some divine purpose? And pre-cancer me answered, "yes." To which present day me said, "Oh, well that's friggin' great. Sorry, it's not my day to care."

I'm not sure what any of that has to do with my current health issues. I've been keeping a chart lately of my pain level just to see what it's really like. The chart has the hours listed throughout the day for each month, and when I'm in pain, I go to the chart and type it the level from 1-10. I think I have put this off for quite some time because I was hoping sort of foolishly and naively that maybe it would all just kinda disappear and I wouldn't have to deal with it anymore. But the results are in, the votes have been tallied, and I'm sad to say that the reality is I am in a good deal of pain and/or malaise on a regular basis. Bobby probably could've told you this months (or maybe even a year) ago, but hard-headed me has insisted on keeping up the pretense that "I'm fine" and/or "Everything is fine." That being said, I feel like now that I can admit that I'm experiencing this pain, maybe I can move forward with it. Maybe now I can deal with the reality and gain what I'm supposed to gain from it, which is, hopefully, the ability to live fully in spite of it.

I saw an endocrinologist on New Year's Eve (before the partying began, luckily) and although I am hopeful that all of my issues have been because of one little gland, in all actuality I think that I need to prepare myself if that is not be the case. I could be wrong, but she was very candid in telling me that Interferon has a way of causing "a syndrome of chronic fatigue for periods of time that are indeterminable." So, in other words, this may be an endocrine issue and I guess it may not be. And, if it's not, it may get labeled as depression (every doctors' favorite "I have no idea" answer) or chronic fatigue. I'm already being treated for depression, and although I know that chronic fatigue is finally being accepted as a real condition by doctors, I also know that treating it is still an art form that takes a lot of trial and error.

I guess what I'm trying to say though, is that either way, I'd like to be okay with this. I'd like to be able to say that I am mentally and emotionally going to be able to live my life fully, no matter the condition, even if I am not able to physically live fully. I want to be that way. I am hoping that my new goal to view things as more of an opportunity than a burden will help me get there.
Because in all honesty I'm not that cancer survivor that says they have learned so much from their experience and diagnosis. I still get mad in traffic, I still dread Mondays, I'm less "enlightened" now that I was before.
But I really WANT to be that happy cancer survivor. I've had my time to grieve and I'm ready now to be the person I want to be, to live each moment fully again. And I think that if I can do that, then maybe I'll remember what it was like to know that I had a purpose here. I want to feel that way again, to feel optimistic about my life and everything that has happened. To be OBSESSED with living. And to not only fulfill my purpose, but to appreciate all the moments in the quest to find it. And to wake up in the morning and say a silent prayer of thanks every day.

I'm just hoping that if I want it this badly, then maybe I can make it so. That's what the old me would've said, at least. So, for now, that's all I'm going to let myself believe.

-MM

Yay me - 33!

Today, my friends, is my 33rd birthday. Every year on my birthday, I can count on 2 things happening. The first one is my Mom calling. Up until Dad died, in fact, I could always count on both of them calling and telling me their 2 different versions of the story of the day of my birth.

My dad's version went something like this: they were outside weighing baby pigs, getting them ready for the sale, (if you're just getting hit with how back-woods, hillbilly, redneck country I grew up at this moment, I apologize and I'll give you a second), when Mom started getting a stomach ache. They realized she was in labor and drove the 90 mile trip to the hospital (again, see back-woods hillbillies) in about 50 minutes. A couple hours later, a nurse enters the waiting room and says, "Congratulations, Mr. Lee! You have a little boy!" And just as he gets all excited, another nurse enters the waiting room and says, "Congratulations, Mr. Lee! You have a little girl!" Turns out there were a couple of Mr. Lee's there.

Then my brother threw the temper tantrum of all temper tantrums because it was the first day of deer season and he wasn't going to get go hunting. So he and my dad leave, and my brother begins his life long obsession with knocking off mammals of lesser intellectual degrees (although I guess that's debatable).

Dad always finished the story with a bit about how the next day he took the cute little pink pigs to the sale, but couldn't sell them because they had lice, and he cried all the way home.

Mom's bit included some details like a knot on the tire all the way to Waco and something about my grandmother in the back seat of the car smoking two cigarrettes at once. I mean, that HAD to be a good time.

The other thing I can count on is that I will find myself at some point today looking back on all my past birthdays and birthday parties and finding myself incredibly lucky to have experienced so much.

And again, I have to say I'm pretty damn happy just to be here today. I never used to tell people it was my birthday because I hated the attention. But now, since surviving melanoma, it's become a really big deal to me to enjoy my the event every year. This is my 4th birthday since my first diagnosis, and I'm happy and feel grateful to have made it another year. I'm thankful for all those days in between these birthday parties, and I NEVER ever complain about getting older anymore!

So I'm off to enjoy my big day, and I'm wishing everyone out there all the joy and blessings that I'm feeling right now.

-MM

P.s. Here are useless and maybe not so interesting things I found out about my birthday:
My date of conception was on or about 22 February 1974 which was a Friday.
I was born on a Friday under the astrological sign Scorpio. According to Birthday Calculator numerology, people born on this day are supposed to be mediators/peacemakers. Hmm... not exactly accurate.

But, as of right now, I am:
33 years old.
396 months old.
1,722 weeks old.
12,053 days old.
289,278 hours old.
17,356,691 minutes old.
and 1,041,401,474 seconds old.

I share birthdays with Sam Waterston (who?), Judge Wapner (awesome!), and Georgia O'Keeffe (love those flowers! or vaginas, whichever you prefer to believe).

In 1974 there were approximately 3.7 million births in the U.S. The top songs of 1974 were Top songs of 1974 were The Way We Were by Barbra Streisand, Seasons In the Sun by Terry Jacks, The Streak by Ray Stevens, Kung Fu Fighting by Carl Douglas, Annie's Song by John Denver and The Loco-Motion by Grand Funk.

The 33 candles on my birthday cake produce 34 BTUs,or 8,568 calories of heat (that's only 8.5680 food Calories!). You can boil 3.89 US ounces of water with that many candles.

And, here's the doozy-

There are only 40 days till Christmas 2007! (start panicing now)

A horse walks into a bar...

sits down, and sighs. The bartender walks down to where he is sitting, throws him a napkin and says, "Hey buddy, why the long face?"


Well, no long faces here. Everything in my world has been unbelievably good. It's actually kind of a strange thing to find yourself in the middle of an awesome life. It's been a while since I"ve felt that way, but it's exactly what's been going on. If you can believe it, I've even been having a little antsy, just kindof feeling like things areTOO good. Too good you say? I know, nuts. Like maybe I should tone down the happiness a little just in case cancer comes back. Isn't that crazy? It's an absurd thought, but it's true. I'm just so damn happy. Somebody slap me.


Which I guess is why I haven't been able to write much. I still check all my usual blogs regularly, still read up on my peeps out there in cyberland that are keeping me grounded and inspired. But when it comes to offering something to them, I'm sort of at a loss. A couple of them are really battling right now, really pushing through some rough times. Fighting like hell to keep melanoma out of the picture, but it's just not working. I know that the struggle takes so much life out of you that you can barely get out of bed in the morning. That kind of struggle fills your every thought. Every minute of the day is zapped by that kind of struggle. They could use the support that a survivor can offer. Yet, when I write to them I feel like I have nothing of worth to say. No real words of wisdom, no advice that will help them carry on. It's like I'm somehow lost at providing any kind of uplifting words.

I know that the truth is that part of it comes from the guilt that everyone who survives while others don't carries. It's an illogical guilt, but forget logic. It's what's there no matter how illogical it is.

And speaking of illogical, then there is that seemingly built-in instinct to prepare yourself, that distance you feel you have to put between yourself and those who are in the midst of their fight with cancer. It used to anger me back when I was first diagnosed, the fear that people get in their eyes when they know you're in the midst of fighting cancer. But b/c we blind ourselves daily with dissilussions that we're all invincible, reaching out to those with cancer has to, in the beginning at least (until you train yourself to do it instinctively), be a conscious act. I still do that every week, b/c I know I won't be able to live with myself if I don't pay forward what so many did for me.

Nonetheless, the thought of cancer of cancer- what it's doing to friends, what it did (and could still do to me) and others, sends chills down my spine. Even now, it's difficult for me to write that I'm NED and a cancer survivor. I guess b/c I know that I could've been like my friends- Leah, Sarah, Shannon, Oscar, Dad- whose cancer spread faster than they could fight it and their lives were cut short. It seems silly to think that I can say I "battled death." It's silly b/c it was hardly a battle; it was not valiant at all- and more like dumb luck that I came out alright. In reality, though, if you've been following me for a while, you were there when the PET scan lit up, when I came home to write and say, "I really hope it's nothing. It's probably nothing." And when they told me they were almost certain that it had moved to my illiac node, you know that it was a battle just to get through that. The surgery and rehab after was nothing compared to the mental fight I had just to keep my spirits up. It feels like Death is always there, just waiting for you to drop your guard. And you start to question the point of doing anything.

Which is why I decided to stick close by all those friends I mentioned before, the ones I didn't want to say good-bye to, but had to. And I assume my hesitation in doing so now stems from them memory of the pain that I felt in hearing that they'd died. And that they were gone forever.

Maybe that's what it is. Or maybe it was just realizing it for the first time, how possible it all is. Either way, I'm glad for all of this, believe it or not. Every pain and every joy I've received from this journey of mine, and every chance I've had to get to know someone else going through the same thing, even though it hurts so bad sometimes to see what they have to bare. At least we're all alive to see it.

I'm sending out good vibes to all of you in the midst of your own battle right now, and to everyone who's ever had to battle anything. And giving thanks for you, too.

-MM

Shannon

Again, I've procrastinated doing the hard things, but it's time to anty up. I'm in San Diego now, but started this post before I left, and have come back to it several times in my thoughts. It's a slow day today, recovering from some debauchery and resting for more to come soon, and I think it's time to come to terms with this topic. I keep asking myself, how can I do her service with one silly post? I pray that this honors her the way she deserves.

Shannon.

The first time I read her blog, I was amazed by her spunk and literally laughed out loud. She had not only that special gift for writing but also a flare for finding in everything -literally, even the bad stuff- something funny. I just spent 45 minutes going back through old posts of hers, and what a blessing it is to all of us to have access to this woman's journey. In spite of myself, I could not stop laughing. To be able to go through so much, and yet never lose that sunny sense of humor, to be blatantly honest and vulnerable and yet so unflinchingly strong, to be in need of friends and support and yet supply that support through her words to so many- only Shannon could pull it off.

And she did. Yet she did it with the greatest humility and the most intense humanity. She said she always had trouble relating to people, calling herself "basically socially inept" and a loner, but I never understood it, because every post was like she was reading my mind. And she had such a sense of love written in every word- she loved animals and was always posting pics of them, she loved being a mom and wanted to be the world's greatest, she brought smiles to so many cancer patients and she never seemed to strike out in anger against all that mounted against her. I took a montage of pics from her blog and posted them here, laughing and smiling at her insane sense of humor.

Case in point? Waiting rooms to her were always "purgatory." She never just wrote, "my house is a mess." Instead, she'd write, "By midmorning, it looked like Christmas had thrown up all over our living room." or "You would think I would be utilizing my time once the kids are in school wisely...but noooo. Into the zone I go. Just sapped; literally wiped OUT. Actually wrote "clean me now" in the dust on my bedroom dresser while a dust bunny the size of a tumble weed rolled by and came to a rest by my feet." I can't help but giggle. I wish I could've heard her say those things, I'm sure she had the timing of an expert comedian.

One of my favorite posts was when she had to get a full body skin check by a new doc.
"The doc also, predictably enough, had to examine the virtual galaxy of moles to be found on just about every skin surface covering my body, then asked if any of my moles were changing. This, after being to countless dermatologist visits, is pretty run of the mill in the life of a melanoma patient. The semi-naked chicken dance without the dancing... Shortly thereafter, the doc instructs me to roll onto my side because he has to check my "backside" as he put it. I have no clue. I am thinking about that mole on my left @$$ cheek and how hard it will be for him to see it if I am lying on my left side. Was I DEAD WRONG. I hear the word hemoccult, digital and rectal called out to the nurse and with a very sharp intake of breath, a gasp that I am sure people heard two rooms down, and eyes literally popping out of their sockets, I stiffened up like rigor mortis set in prematurely."

And yet you knew, even in her humor, how it felt to be down, in your lowest moments. She wrote one time, "I don't think I spent a collective 10 minutes this morning not crying and wallowing in that annoying self pitying state that makes most people wanna nail you upside the head with a 2X4."

I'm going to miss Shannon so much, I can't imagine what her family must be going through. This all seems so senseless, but, as I've been told, people like Shannon are a gift, and we must appreciate every moment we've had to know them. I know that she left me with great words of wisdom that I try to remember every day.

"I wish like hell I never had to imagine the scenario of leaving this amazing life behind, because, simply put, it makes me feel as though someone punched a whole in my chest and ripped out my heart....laid me bare....
But no matter what....Live only in the moment. For good or for bad, that is all any of us is really guarranteed, melanoma or not.
And the beat goes on..."

2 years, 1 month and 141 posts

That's right, it's our "looking back" episode, kids. Cue the music montage.

The very first post on this blog was June 14, 2005, when I'd only known my diagnosis for about 3 weeks. In honor of everything besides melanoma, I've decided to post a top 10 list of some of the most important things the last 2 years have taught me.

So here they are, in no particular order.

1. Normal is something we've all aspired to at some point in our lives (remember those teenage years?). But melanoma has taught me, at least, that normal is just a setting on the dryer. It's a silly term, a crazy concept, and, let's face it, a thing of the past. I spent the whole first year trying to appear normal after the diagnosis, trying not to make anyone feel uncomfortable. Then I spent the last year recovering from Interferon, just trying to get "back to normal." Slowly, I've come to realize that there is no normal anymore. Or, rather, there's a "new normal." Subtle differences and changes that I had to make have made a world of difference since my diagnosis, but, over time, I've learned not to fight it. The way I work, the way I play, the way I eat, the way I think, who I choose to be and who I choose to be around- everything has been touched and changed, and yet, there is no anger in the lack of normal. It's just a new life, sometimes more difficult, but always much more human and mortal and real.

2. Activism is real and powerful. I've been involved in it most of my life, but only after I became Ms. Melanoma did I realize what a difference it can make. I'm touched by so many people I've come in contact with that work hard to bring melanoma awareness to light, and they give unselfishly and lovingly to that greater cause. My advice to you: pass out some fliers, walk a 5k, answer some questions, change a life. You'll inadvertently change your own, too.

3. Friends can make a world of difference. This can go either direction- as in, people you barely know, people you've never met, and people who don't even know your real name can "show up" when it's necessary and make the tough times bearable. On the flip side, friends you thought were family may not be able to hang in there. This is the ebb and flow. Which leads me to #4.

4. Take the good with the bad. Nothing is all positive or all negative, believe it or not, and what we take from experiences defines who we are.

5. Asking for help is not being weak. Or maybe it is. But it doesn't matter. Either way, there will be a time you need to do it. Yes, it's humbling, and yes, it's sometimes demoralizing; I mean, no one wants to ask for help wiping their own hiney. But, in another way, it's a gift. It allows you to see what happens when you are vulnerable, and who will help you to rise above it. I've been lucky, or blessed, or both, but the people that have surrounded me through the toughest times make asking for help a safe and comforting experience. Which brings me to #6.

6. I have the greatest boyfriend on Earth.

7. On a grander scale, cancer has given me the ability to accept that my death is imminent. I've written about this a lot in this blog, because it is such a huge perception change. This last path report gives everyone, first and foremost me, but also my oncologist and doctors, lots of hope that this won't be happening anytime soon. Nonetheless, having this disease has been an eye opener as to the way we deal with our own mortality in this culture, (which, essentially, is by not dealing with it). Why don't we face the truth? We are frail and temporary beings. And it (as in cancer, accidents, disease) COULD happen to us. I'm not planning on checking out, but just knowing how close it can be, I think I live my life more fully.

8. I am more than my diagnosis. Even so, living with disease is harder than you think.

9. We all have an innate strength within us. I can't tell you how many times I've been told by people "You're so brave" or "you have such a great attitude." The truth is neither of those, though. People I know with cancer, friends who have lived with it or are living with it now, they outdo me in courage and attitude tenfold any day of the week. But the fact is, if it came down to it, we'd all be able to get through it, even if it wasn't with the grace and dignity that my friends exhibit. The Duke said it best when he said, "Courage is being scared to death but saddling up anyway."

10. Control, 99% of the time, is just an illusion. The only thing any of us can control is the way we react to a situation. That, perhaps, has been the most significant of all the lessons I've learned.

Thanks to all of you who have traveled this journey with me, and for all you've said and done. Oddly enough, it's been a good 2 years in many ways.

-LL

P.s. Please keep Shannon in your prayers

So many things to say

Well, my 5 day stay at the hospital has come to an end, and the news that seems so unlikely and too good to be true turns out to be real afterall. Free and clear. No melanoma.

It feels- amazing. Amazingly like it used to before I knew what a cancer diagnosis was like. Like I went and had my first mole removed and the path report was negative, and now I can go on with my life without the worry of all the stuff that coulda been. Like life never got scary. Amazing. I still tear up when I talk about it.

Now, I know that I'm still a survivor, and I still must be vigilant, and I know all that comes with that. I'm sure that in a few weeks or months when it's time for scans again, that I'll be scared until the results come back, and that I'll still panic over new moles or strange pigments or funny aches and pains. But I feel, today, like I've won the lottery and I've no limit to what I can do with the gift I've been given of "no evidence of disease." Free and clear.

And, yet, of course, I am hurt, too, by the fact that we have all lost Sarah. I simply can't believe she's gone.

Since February of this year, I have lost four people to cancer. I can't say how it hurts to write that.
Cancer is almost always a whirlwind of a mixture of the strangest feelings- joy at the good results, pain with the bad. Grieving the loss of all you had in your life (or at least you thought you had) before the diagnosis, and rejoicing in all you've learned and figured out about life since then- like the precious gift of a single moment. There's the joy of meeting the most amazing people on Earth, making friends across the country, drawing strength from their journeys- and- the flip side of that- is hearing that this stupid disease beat their spirit once and for all.

A few weeks ago, I wrote about Oscar, and I said that my first instinct when I thought about his death was a sense of relief that he was finally out of pain, out of the battle. At ease. And, after that feeling, it was simply a matter of getting past the missing him. I know that everyone that knew Sarah is probably feeling this same thing right now. But I can't tell you how much strength I drew from her advice. And I'm angry in the selfish way that she deserved so much more. I read her blog again and it's like I'm reading the story of a superhero, who put her private self out there so other people could learn. Amazing how she never gave up and she fought her way through the system to make sure she'd find a doctor who would treat her to fight melanoma till her last breath. And now that she's gone, it's stranger than ever.

So, again today, is the whirlwind. And I am just soaking it all up- the ache for Sarah and Derek and the joy of the gift that I know I have been given. It never makes sense, but I think to seek reasoning or consolation or an explanation is only inviting a conflict that I can't resolve.

Once again, no tidy wrap-up, but a quick petition to the higher power that is (or is not) ruling all this: thank you for my time knowing Sarah, thank you for lending Sarah to the world for a while, and thank you for the grace I've been offered, too.

-L

You don't have to call me darlin', Darlin.

Allow me to go full-on hippy on you today.
The truth is, despite the malignant melanoma, I know what I'm supposed to know. I know that if I don't take the time to enjoy every moment, a whole lifetime can suddenly sneak by. I know that ultimately, death is nothing more than another experience in a long line of experiences. I know that being aware of every emotion I feel and being true to those are what keep me happy and make me feel sane. I know that seeing things exactly as they are is the means to daily peace. I know those things.

And yet somehow ugly malignant melanoma poopie head still has a knack for taking control of my thoughts, of my actual BEING, to the point where I feel that I don't even know who I am. Literally I think to myself sometimes, who am I? Because when it boils down to it, I'm not who I thought I was. I thought I was a fighter. I thought I was the type of person that could come out of this shining, with renewed vigor for life and a stronger conviction for... I don't know, something. I look back at those thoughts now and I just think about how naive they are. Yes, I am a fighter. But would I "fight"- risk my quality of life for a year for a 6% increase in chance of survival? No. Never. Am I coming out of this experience shining? Yes and no. No, I'm not the spokesperson for unprecedented optimism. And yet I don't think that's a bad thing. I think I actually see this for what it is, and acknowledge how painful it is not only to be diagnosed, but to see friends and family and people you love go through horrible experiences. Not even horrible like death (although a painful death is a given). But just horrible experiences like dealing with the fact that treatment hasn't worked or that the recurrence has spread through their body. Yet I do see that life is different for me and changed and, I admit, in some ways better. Not better like I thought it would be, but still, better. There isn't a time I talk on the phone or hug someone goodbye or even just talk to them that I don't think, "This could be the last time I do this." Even with cancer-free people I think this. Some may call this morbid, but I believe this is the reality of this life. We just never know what could happen, and I know this from experience. Lia. She was there one day, and it seemed the next she had moved in with her parents, then just like that she was gone. Like that. Two weeks. A whole life whisked away from me. A bright star I never got to see again. Who knows what could happen to me or anyone else just like that? In Tibet, there are stories of monks who pour the water out beside their bed before they go to sleep because they know the moment of death could come at any moment. Why plan on being thirsty when we have no idea when this life ends? It's an amusing thought and yet at the same time I think that's how we should all be living. Why not embrace this impermanence? Isn't that what living is about?
I think a while back I told you that I had dreamt of my dad. This had to be a year or so ago. But when I woke from that dream I had the most insanely peaceful and warm feeling. Bobby was laying beside me and I was trying to explain the feeling- a warmth I could not express, a peacefulness and an ease that would not allow for any anxiety or regret. Slowly, as I lay there, the feeling crept away, and the normal feelings of isolation and futility which we often don't even realize we have took over. I didn't think much of it. In the last few weeks I had the same experience again, but this time it wasn't with my dad, it was just some sort of shadow person. And the feeling was the same again- warmth, peace, calmness, comfort. The feeling that everything was truly going to be alright. The feeling that all the worrying I do and the guilt I feel are such complete wastes of precious time. When I tried to explain it to Bobby, what I finally said was, "It was like love. Like realizing for the first time what love feels like and what it feels like to be unconditionally loved." Warm and glowy and wonderful, like nothing can do you any harm. I even said to him, "that's why people that have near death experiences aren't afraid- because they have felt that feeling." This is part of what I know. I know that this type of feeling is available to me- that I can find this peace in myself if I embrace what I know. I know that if I don't take the time to enjoy every moment, a whole lifetime can suddenly sneak by. I know that ultimately, death is nothing more than another experience in a long line of experiences. I know that being aware of every emotion I feel and being true to those are what keep me happy and make me feel sane. I know that seeing things exactly as they are is the means to daily peace. And knowing all of this brings me closer to that feeling of ultimate love.

-L

Could you come back in a few beers?

Well, I guess it's time for an update. Not sure if I'll get through everything I have to say, but here's a start nonetheless. I have an appointment with the surgeon on the 26th. The surgeon will be able to tell me whether this lymph node can be removed by surgery (hence the word surgeon) or if this will have to be handled with radiation. I've had a lot of people telling me that I need to get a 2nd opinion, and so I'm making an appointment at MDA. MDA, as in, you know, like the best cancer treatment center in the south. THE MDA. The problem, though, is this: how will I get treated at MDA? It's not like I'm going to be able to afford the out of network co-pays/deductibles/etc. Plus, how will stay there for 6 weeks when that's what type of radiation we're looking at? It's an outpatient treatment, I don't know anyone in Houston, and I don't make enough money to pay for that kind of hotel bill. It's a lot to think about. I guess I could work the corner. Some guys are really into scars.
For now, I guess we'll just take it one step at a time, and that means I'm only thinking of the appointment next week for now.

Bobby and I are both handling the news pretty well. Amazingly well, actually. We both keep saying, "Is it wierd what a relief it is to be fighting cancer again?" It's something only a cancer survivor can understand, I think. You just don't know until you've been there. It's the new abnormal, people. Sitting around waiting for it to return when every doc you see tells you it's most likely coming back will drive you up the walls. Knowing that it's here and it's really just one lymph node and that we can treat it, that's a relief. I know. I can't explain it.

Still loving the new oncologist. I called and left a message yesterday that I had a few questions, and I'll be darned if the buger didn't call me back today. I went through the whole list of what I've been wondering: am I a stage 4 now? is the cancer in my blood? how long would radiation take? what would surgery look like if we're able to do it? do fish have eyelids? what's your favorite Olive Garden entree? We weren't on the phone long, but he was very willing to answer all my questions and even told me to call him back tonight or tomorrow if I thought of more. This is just a whole new ballgame for me. The Parkland Oncologists talked to you with one hand on the doorknob and one foot out the door. It just feels like such a totally new level of care and I can't imagine getting anything better elsewhere, as false as I know that to be.

Anyway, that's about it. I'll go ahead and plug my TNT fundraiser that I'm doing for the Leukemia and Lymphoma Society in case anyone is interested in that. It's a great cause!
http://www.active.com/donate/tntntx/tntntxLLee

As for now, I feel pretty okay, surprisingly. I've been thinking a lot lately, especially since Mary's death, that we don't just don't know much about this little life. Does it begin at birth and end at death? Or are we just assuming that because we tend to think of ourselves as all-knowing? Just something that's been rolling around in my head.

Okay, well, I'm all over the place tonight. But I'll be back as soon as I know something.

-L

I also think you're more than just fat

When I was 22 years old, I was "hospitalized" for 2 weeks for severe depression. "Hospitalized" as in I was institutionalized for major severe depression. I don't mind telling people that; in fact, it's been 10 years now, and I can't even remember ever having shame about that- even though, at some point, I'm sure I did. But I know that it's a part of me and my past, and because I still suffer from depression sometimes, it helps to remember that time. In fact, I learned so much there that I use in everyday life. When I tell people that and they seem shocked or embarrassed for me, I makes me so sad for that person. It must be so hard for them when they have to admit how human we all are.

That experience, believe it or not, was the beginning of my "real life," the one I've been living for quite some time now. It led me to what I do, what I am, how I believe.

My hope is that I will walk away from cancer with this sort of attitude. I guess because I had a sort of life changing experience so early in life, I haven't exactly had the same view of cancer as a lot of people I know. I still get mad in traffic, I still haven't found my greater cause for having gone through this. Is that negative? I'm not sure. The Boob and I both believe that a lot of good has come out of this, and it's not like it hasn't changed my life. But I guess I'm just not over it.

I hate it. I hate cancer. I that I had it, I hate that it's changed who I am. I hate that I don't know how to be who I was. And I'm pissed.

Where am I going with all of this? Well, I'll tell ya. All these thoughts have led to a lot of reflection, and I finally broke down and just decided to get some good ol' fashion therapy.

So I found a therapist. A great therapist, actually, and even though I've only chatted with him once, it made a tremendous difference. He even has some experience counseling cancer patients, too. I'm really hoping this will help out this whole process. I mean, hey, it can't hurt, right? So, yeah, I'm stoked. I'm in therapy. Let the mother f**king healing begin.

Oh, but that's not all. There are changes abound going on up in this mug. I also started a running log online, and you gotta check it out. I'm on a roll. Seriously. I'm the next big thing in fat girl running.

Bobby and I also had some excellent advice the other day when we were both bitching about the state of things in these United States. Some good friends of ours are planning on moving to Costa Rica, and it just might be the spot for us, too. Did you know they did away with their military and put, literally, all of the money they were spending on education instead? So, as poor as this country is, it's got a 100% literacy rate. Is that awesome? How can you not love this country?

Also, it's one of the most biologically diverse and ecologically friendly countries in the world. And, this is the kicker- it's warm all year round. Consider me a Tica, hooches.

Amazing, isn't it?
How something so awesome can fall in your lap? I'm personally excited.

I've also started the quest for a new tattoo. I'll keep you posted on that, but the prospects are almost as exciting as my new life in Costa Rica.

That's it for now... peace and porkchop grease-

-MM